Contact us

Would you like to be connected with other families?

You're not alone.  Reach out for support if you or a loved one has been diagnosed with CdLS or you suspect they might have CdLS.  We connect families with others in their area or those with similiar challenges.  

We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.

We have regular family gatherings and virtual hang-outs to ensure geography will not make you feel isolated.

Contact us at

East Coast

9 Families Connected

BRITISH Columbia

7 Families Connected


5 Families Connected


47 Families Connected


30+ Families Connected

Nova Scotia

1 Family Found

New Brunswick

4 Families Connected

New Foundland & Labrador

5 Families Connected

Prince edward island


1 Family Found


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